About the Organization
The Endo Initiative is a community-based organization dedicated to breaking the silence and stigma surrounding endometriosis. Launching in 2026, we aim to create welcoming spaces across NYC and Long Island where patients, caregivers, and allies can connect, learn, and find support.
Through monthly gatherings featuring expert guest speakers—from physicians and pelvic health specialists to mental health professionals and nutritionists—our goal is to provide resources, tools, and insights to empower our community. In the spirit of giving back, portions of all event proceeds will be donated to organizations advancing endometriosis research, awareness, and patient care.
The Endo Initiative is a space where stories are seen, pain is heard, and every presence is valued. Our mission is simple: nobody should face endometriosis alone.
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Founder
Meet Emma, a Stage 4 Endometriosis warrior, Lyme Disease advocate, and public health and communications professional. As a current MPH candidate at Tulane University, she is always exploring new ways to raise awareness about underfunded and under-researched conditions that affect so many lives. Over the years, Emma has contributed to community-focused initiatives, including the social impact campaign for the documentary The Quiet Epidemic, and an internship with Picture Motion where she helped create digital campaigns for public health awareness, working on projects for Disney, Hulu, and other major organizations.
Emma’s own endometriosis journey, including surgery in January 2025 and the isolating realities so many patients face, inspired her to start The Endo Initiative. She wanted to create the community she wished she had: a welcoming space where patients, caregivers, and allies can connect, share stories, learn from experts, and find strength in one another. For Emma, this work is deeply personal, and her mission is simple: nobody should face endometriosis alone.
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